This is my boss
Nov 11, 2007 Friends, Read/heard/seen
From: Day 11: Organ and Tissue Donor Sunday. : Kidneys and Eyes
In September 2001 Quinn was born and diagnosed with polycystic kidney disease. She would need a kidney transplant to survive they said. We were told: “with kids like this you need to take her home and love her as long as she is with you.†Three months later, Gage was diagnosed with PKD as well and we were devastated once again.We’ve lived our lives with this congregation.
We didn’t know then he would be placed on the national list in need of a kidney transplant by age 7.
For the next few years we tried to act like a normal family. We were active in this church, our kids were in activities and school, we moved, we worked. And the kids were regularly tested and took many daily medications to control the devastating effects of PKD.
Knowing your child has a progressive disease and waiting for your child’s organs to fail until you will be able to do something in nearly unbearable.
Now go read the rest of it.
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Tags: Julia
I quantified this site
Nov 11, 2007 Blogging
If the stats are true, here are some facts about y’all visiting me here.
- More women than men read me.
- Most of my readers are between 25 and 34. The next highest segment are between 55 and 64.
- Most of you have had some grad school.
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The boys are home!
Nov 11, 2007 The Story of My Life
Their plane got in fifteen minutes early last night. Madison ran into Noah’s arms and he said, “Wow, did you grow last week???”
Brett missed me as much as I missed him and — for the first time in a decade — isn’t mourning about leaving Portland. It’s changed so much since we lived there that it’s not the same city. As he was walking around where we used to live (222 SW Harrison) and taking in all the enormous buildings that have gone up he just felt ready to come back home.
Noah somehow got huge in a week. He’s filling out — like his kneecaps are getting bigger! Last night I was thinking how that bright-eyed little boy is gone forever and indulging in some sad about it. He’s moving away from us — just as he should be — and thickening up in preparation for a big growth spurt in his teens and it’s starting to erase some of the child he was. (Listen to me — I sound like he’s moving out next week!)
Anyway, Noah loved the trip, loved Portland, loved all the movies he watched and donuts he ate. He’s hoping to come out with me when I’m there for the AAC conference; we’ll be staying in Wick and Karoline’s cottage. (If budget permits the rest of the family will come, too, but right now it looks it’ll just be the two of us.)
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Madison says 2
Nov 10, 2007 Parenting
More things Madison has talked and asked about since getting up this morning:
- Why I married Daddy.
- Why I didn’t marry J (my friend’s husband and her current crush).
- Whether or not she can fire me if I make her put her own pajamas on tonight like I did last night. (”You will be LAID OFF!” she told me.)
- Whether or not tummies are private (I said they are “kind of private” and it’s ok to show ‘em at home but probably not at a restaurant.)
- Why tushies are private if tummies aren’t. (She decided it was because tushies are “gross” and tummies generally aren’t.)
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Tags: Madison
Madison says
Nov 10, 2007 Adoption
We were talking about babies and being born and nursing this morning. Madison wanted to know why I don’t have milk in my breasts these days and wanted to know if Jessica nursed her and she was a little grouchy to hear no. Then we were talking about all the people we know who were adopted and I said, “You remember what adopted means, right?” (Because we haven’t used this term much.) And she said, “Yeah, it means Noah got to drink milk from your nipples.” And she felt grouchy and I felt sad.